Sunday when Gary & I went there Benjamin was doing great. He’s been doing 1 hour trials 4 times during the day shift of optiflow oxygen. This is sort of like high flow oxygen but has a lot more settings. Anyway it’s better than bi-pap. They had to switch him to this and the nurse asked if we’d like a picture with him with nothing on his face:)
Monday when I went to the hospital, Benjamin wasn’t doing as good. He was only able to do a 15 minute trial of the optiflow oxygen. Then for his second trial he didn’t tolerate even being switched to it. A lot of this was due to the fact that the night nurse didn’t suction him overnight because his saturations didn’t really show that he needed to be suctioned and she wanted to let him sleep. Big Mistake!!! Benjamin really needs the suctioning so now they are making sure to stay on top of the suctioning.
Today when I called, Todd said he was having a much better day:) He tolerated his optiflow trials and was up in his chair laughing and giggling. He loves playing with Santiago (one of the care aids).
The nurse took a picture for us when they were switching him from the bi-pap to the optiflow:)