Wednesday, February 23, 2011
Benjamin's potassium levels have been going up all day and they aren't sure why. He is being switched from the scuf (small dialysis machine) to a regular dialysis machine. It's hard right now because it seems like every time there is a small step forward something else goes wrong. On the positive side of things, they took out his arterial line and put in a new one since the old one kept bleeding and because he is on heparin (a blood thinner), that is potentially dangerous. They also put his catheter back in since they want to monitor his output more. They are trying to wean him off the ECMO again. However, I'm trying not to get my hopes too high only for them to crash. The emotional rollercoaster is very hard. One minute I'm happy & laughing about something and the next minute I could be crying. Some people have said that we're strong. However, I speak for both of us when I say that we don't feel very strong. We try to stay sane by playing games, visiting with people, and by writing my feelings on the blog. We love visitors, so if you would like to visit with us, feel free to call/e-mail and see what works for us.
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5 comments:
{HUGS}
Greta & Gary
Let God be your Strength and he will give you Hope because in Him there is always Hope.
Shed your tears Greta & Gary, they help cleanse and give you courage.
I can't say I know how you feel or that I understand, but I do know God does and He is right beside you every step of the way.
I will continue to pray for Strength, Hope, Comfort, Peace and Wisdom. God Bless you Two.
Benjamin - I am singing this song for YOU
Jesus Loves the little children, all the children of the world.
Red and yellow, black and white. They are Precious in His sight.
Jesus Loves the little children of the world.
Jesus LOVES YOU and so do I.
Hugs to you All
Barb Delviken
Praying that God will continue to provide strength for each moment and that you will feel the love and care that so many have for your little family.{Hugs}
Love Robert & Sandra
We are keeping up with every post you write (I know, I should comment more often) and the kids ask me every day, 'How is Benjamin doing?'.
We probably won't make it this week to visit, but will come by as soon as we can again. {hugs}
Praying and hoping!
Dear Gary and Greta, Benjamin, Kyle and Devon,
I've been following your blog the last few days and lifting you up in prayer daily. What a difficult valley you have been led to travel through, but what a comfort you do not have to walk alone. God has promised to never leave us or forsake us, and I pray that you may experience this very intensely now as you sit by Benjamin's bedside, wondering what the next minute will bring.
"Fear thou not; for I am with thee: be not dismayed; for I am thy God: I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness." Isaiah 41:10
"But now thus saith the LORD that created thee, O Jacob, and he that formed thee, O Israel, Fear not: for I have redeemed thee, I have called thee by thy name; thou art mine. When thou passest through the waters, I will be with thee; and through the rivers, they shall not overflow thee: when thou walkest through the fire, thou shalt not be burned; neither shall the flame kindle upon thee.
For I am the LORD thy God, the Holy One of Israel, thy Saviour:" Isaiah 43: 1-3a
STEP BY STEP
He does not lead me year by year,
Nor even day by day;
But step by step my path unfolds,
My Lord directs my way.
Tomorrow’s plans I do not know;
I only know this minute.
But He will say, “This is the way,
By faith now walk ye in it.”
And I am glad that it is so,
Today’s enough to bear,
And when tomorrow comes, His grace
Shall far exceed its care.
What need to worry then, or fret?
The God Who gave His Son
Holds all my moments in His hand
And gives them one by one.
Barbara C. Ryberg
A sister in Christ
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