Wednesday, February 23, 2011
Benjamin's potassium levels have been going up all day and they aren't sure why. He is being switched from the scuf (small dialysis machine) to a regular dialysis machine. It's hard right now because it seems like every time there is a small step forward something else goes wrong. On the positive side of things, they took out his arterial line and put in a new one since the old one kept bleeding and because he is on heparin (a blood thinner), that is potentially dangerous. They also put his catheter back in since they want to monitor his output more. They are trying to wean him off the ECMO again. However, I'm trying not to get my hopes too high only for them to crash. The emotional rollercoaster is very hard. One minute I'm happy & laughing about something and the next minute I could be crying. Some people have said that we're strong. However, I speak for both of us when I say that we don't feel very strong. We try to stay sane by playing games, visiting with people, and by writing my feelings on the blog. We love visitors, so if you would like to visit with us, feel free to call/e-mail and see what works for us.