As I sit here, it's hard to know what to write. A lot of the time things are the same. Benjamin seems to be doing ok today. His arterial line was bleeding quite a bit this morning so they had to put another bandage around it quite tightly so his fingers are a bit purple. His O2 challenge was a bit better than yesterday (87) but not as good as it was 2 days ago (157). This is probably attributed to the new circuit on the ECMO as well as the "kidney" on the ECMO. He seems to be very peaceful today even when he is awake. He doesn't wake up much anymore because of all the sedation. But when he was awake this morning he was very peaceful.
I have a hard time remembering the "other Benjamin" now that we've been sitting here with this "sick Benjamin" for so long. I try to remember the mischieviousness, the giggles for no reason, the anh, anh, anh telling us he wants to go downstairs to play or sit on our laps. One thing I do remember is that we were sitting at the dinnertable when all of a sudden Benjamin started giggling so hard at Kyle. We didn't know why but in no time we were all laughing just because Benjamin was giggling so hard. Another thing I remember is when I had to quickly pick up something from the store, as soon as Benjamin heard the door beep, he would scoot over as quickly as he could and say "bye, bye, bye, bye." I regret that I didn't take the time to always take him along. So if you have children, and you feel you don't have the time to play with them, take them along to the store with you, etc. take the time!!! You never know when you're going to be sitting by his/her hospital bed watching your child fight for his/her life.
It is a beautiful sunny day out here! I love sitting in Benjamin's room watching the sun shine in. I think of the song, "Oh Let the Sun Shine In".