Benjamin doesn't seem to be doing as well today. His O2 challenge was only 50 but the doctor said that he expected that because of the change of circuit yesterday and them trying to wean him. Today they are going to add another machine to his already crowded room. They are going to put him on a dialysis machine that will be added to the ECMO. They have been giving him lasix which is a diurectic but they want to wean him off this drug because they don't want it to affect his kidneys.
Today we've been here for 2 weeks. We are getting emotionally drained but are hanging in there.