Yesterday we went to Children's again for an EEG. Benjamin had to stay up till around 9:30 pm the night before so we went to Ken & Yvonne's, dropped off Kyle and had coffee, well water & cake with them. It was a great visit and really helped Benjamin stay awake. Then Kyle slept over there (thanks a bunch still by the way). The next morning we were up at 5:30 am and left by 6:30. Benjamin had to stay awake in the van so I sat in the back with him. But I was unsucessful at keeping him awake. About a 1/2 hour before we got there he fell asleep & I could not wake him up. So the EEG was a bit longer than usual since it took him quite awhile to fall asleep. It was supposed to be an hour long EEG but ended up being 2 and a bit hours long. But they wanted him to fall asleep since he mostly has seizures as he's falling asleep and waking up. Then we went to see our neurologist. We got great news!!! The jerks that Benjamin was having during the EEG aren't actually seizures, just twitches when he's sleeping. So this means that Benjamin's medication is controlling his seizures. What a reason for thanks to God. So now we don't have to go back for another EEG for another 4 months. That is so great since he's had 4-5 EEGs since this all started in March.
Now hopefully we get in soon for his sleep study and then appts slow down a bit.