Benjamin is doing well today. He is much calmer than yesterday. He was crying a bit when I came but I was able to calm him down. He was sucking on a soother today, which he really liked. The nurse also brought both Benjamin & Kyle some hats and booties which they wore for pictures. It was so cute! Benjamin is not getting fed again as he is getting his 2nd dose of Indocid. They’re hoping this course will close his PDA- otherwise he may have to have surgery. The ultrasound results finally came back! It showed that his brain hemorrhage is slowly resolving. The ventricles are not getting blocked so that is a good sign. The doctor also told us that you can’t always tell the long-term effects until they are 2 years old sometimes.
Kyle was playing the yo-yo game again today. It was a little bit scary because he had to be bagged two times today while I was there. He holds his little chest so that the ventilator won’t work and this he desatts down to 25 (really bad!). I told him that he had to start behaving because Daddy is coming tonight to get him in trouble. He is going to stop feeding and get his 3rd round of Indocid. If this round doesn’t work he will have to go for surgery- it’s scary to think that but the doctor told me that it is just as risky as getting a c-section done so that makes me feel a little bit better.
Benjamin wearing his new hat & booties. They didn't
stay on long though because he didn't really like them.
Benjamin sucking his soother. It is a special kind that fits under his ventilator. He really loves it! Also cuddling up to his teddy, who is now wearing his hat. Thank you to Auntie Ali for the teddy. I love to snuggle with it.
Kyle with his new booties. He couldn't wear the hat as it doesn't fit over his IV.
Kyle's little lamb from Auntie Ali. He loves to snuggle with it or use it as a foot prop. Thank you Auntie Ali for washing it for me so I could use it in my isolette to snuggle with. I really like it!