Today when we came into the ICU we wondered what to expect... Would Benjamin be doing better than yesterday or worse than yesterday? Then we phoned in to come in & they were doing rounds right by his bed so we had to wait 10 minutes. Exactly 10 minutes to the second, we phoned again. "Sorry, they're still doing rounds. Can you wait another 10 minutes?" In my mind I'm thinking "NO, I don't want to wait but yes, I will." Anxiously pacing the waiting room we wait another 10 minutes. Ok, the time seems to be taking forever! We walk back, phone again and are given the ok to come in. YEAH!! Now to wash our hands for a minute, dry them, walk over to the back of the ICU, gown up, put a mask on, open the door & finally get to see him:)
Jenny is his nurse today. She is an awesome nurse! She tells us that his O2 challenge was 108 today! 108!!!! That is great news! We're on a high right now. His O2 challenge needs to be over 100 in order for them to try weaning him off ECMO. So today they are going to play with the numbers on the ECMO machine & ventilator and try get him into a position where they can take the cannulae out either tomorrow or Monday.
It's still very critical but it's definitely a step in the right direction. Amazing how one day we spend most of the day crying because we're not sure if he'll make it & 2 days later we are excited that they might be able to wean him off ECMO. It's still a long road ahead but we try to live day by day as if we look at the road ahead we get exhausted even thinking about it.
We are looking forward to Alice & Tim coming for lunch and then Bert & Debbie coming for dinner. We love it when people visit as it breaks up the long days a bit. And we are definitely enjoying the sunshine!
Thanks for all the comments. I know I haven't said it but we do appreciate them a lot. It helps us to know that we are not alone and that a lot of people are thinking about us & praying for us. If you don't know how to comment. Select anonymous, write the comment including your name please, and then fill out the capcha code at the bottom of the page.
Get better soon Benjamin!!